Tuesday, April 23, 2013

Triggers and Coping Webinar Summary

The recording of the Webinar is no longer available
Please contact us at info@willis-ekbom.org about viewing the webinar.

A big thank you to Ann Battenfield, Kathy Page and Alice Maxin for their wonderful presentation on Triggers and Coping Methods. 

You can listen and view the recording by clicking here or to view the PowerPoint you can click here. The handout to this presentation can be viewed by clicking here.

For those of you that attended the Webinar and left a question, we have a follow up handout with answers to most of the remaining questions. You can view this handout by clicking here.

Feel free to send any notes or comments to the Foundation at info@willis-ekbom.org. We will forward any additional questions or notes to the presenters.

Tuesday, April 16, 2013

Guest Blogger: Coping and Triggers by Kathy Page

If there is a common thread between all people who suffer with WED/RLS, it is that it affects us all differently. How strange is that? Medications that work wonderfully for some cause real problems for others or don’t work at all. Some get relief from massage, reflexology, hot/cold baths, and exercise. For others none of that helps. Some individuals have it in their legs, some in their arms, feet, torso and arms. Some have great doctors, friends and family that understand and some don’t. But the one constant is that it is horrible and there is no cure.

Because of all the differences, it seems like we have no real control over this disease. Instead, it controls us and every aspect of our lives. We never know when it will hit, how bad it will be or how long it will last. But there is one thing we can do to gain some control; educate ourselves.

The first place to start that educational process is to know yourself. Learn the signs that indicate an attack of WED/RLS. Keep track of things that can trigger symptoms, such as caffeine, antihistamines, alcohol or stress. Be aware of problem areas for you and avoid them if possible. Learn how to cope with the attacks; what will help with the symptoms or how to keep occupied when an attack happens.

There will be a webinar on April 22 that will provide more information about triggers and coping. It isn’t too late to sign up and learn more. Sharing ideas on how WED/RLS affects us and what we do to get by will benefit all of us. The more we learn about WED/RLS the less control it has on our lives. That’s the first step in our fight against this disease.