Thursday, September 22, 2016

Top 10 Ways to Celebrate RLS Awareness Day:

  1. Change your Facebook picture to our ‘RLS Awareness Day’ image (see RLS Foundation Facebook page) and tag us! You will be entered to win an RLS T-shirt and goodie bag! Win a Bravelet with the MOST LIKES on your post. 
  2. Write a letter to the editor about your experience with RLS and send it to your local newspaper, TV station, or send it to us to post on our blog.
  3. Tell your RLS story in video, photo or write a poem using the hashtags #RLSAwarenessDay2016 on Facebook, Twitter, Instagram or YouTube.
  4. Order an RLS Bravelet for you or someone you care for and support! A portion of each Bravelet sold in support of RLS is donated to the RLSF! 
  5. Become a Support Group Leader! Visit the volunteer page on our website or email Chiara at for more information.
  6. Everybody knows somebody with RLS. Download our postcard and send to four of your friends telling them about RLS Awareness Day, September 23, 2016 … the day the RLS community stands together with hope for a cure!
  7. Download the RLS Quick Guide and share it in your community. Send it in emails. Post it at schools, places of worship, grocery stores, libraries, community centers and other public billboards. Bring it with you to appointments and leave copies in doctor's waiting areas – GET THE WORD OUT … YOU ARE NOT ALONE!
  8. Gift or be gifted an RLS Foundation membership!  Give the gift of membership to a friend or family member (a $35 value). Or ask that a membership, or donation, to the Foundation be gifted to you for a special occasion, like your birthday! Membership includes our quarterly magazine, NightWalkers and access to the 'Members Only' section of our NEW website, where you can download any publication, access archived editions of NightWalkers and educational webinar archives.
  9. Kids and teens have RLS too. Ask your school or sports league to announce RLS Awareness Day in morning announcements or during half-time! Be sure to share the RLS Teen Guide or Children's Booklet with your school nurse.
  10. Purchase an RLS Awareness Ribbon magnet for your bumper.

Wednesday, September 21, 2016

New Statement from the American Heart Association

The Link Between Sleep Disorders and Cardiovascular Health

On Sept. 19, the American Heart Association released a scientific statement confirming that sleep disorders, like obstructive sleep apnea and insomnia, are associated with negative cardiovascular health.

The American Academy of Sleep Medicine and the Sleep Research Society recommend that adults get in at least seven hours of sleep every night. However, this is rarely the case. In fact, according to the National Heart, Lung and Blood Institute, roughly 50 - 70 million adults in the U.S. each year report insufficient sleep or suffer from a sleep disorder.

With these new findings in mind, it was suggested that the AHA focus on sleep behavior through a public health campaign concerning proper sleep habits, as well as educating clinicians on how to screen for sleep disorders. Additionally, it was recommended that the impact of other sleep disorders, like restless legs syndrome and periodic limb movement , be tested for their relation with cardiometabolic risk.

To read more about the AHA's statement, check out this article featured on Cardiovascular Business.

Tuesday, September 20, 2016

Celebrating our RLS Foundation Family

Zibby and Faith

For the last two years, the Foundation has had the privilege of working with two exceptional employees - Faith and Zibby! Read more about these members of our RLS Foundation family below.

Meet Zibby

Every organization has one individual with a vast set of experiences that makes them a “jack of all trades.” At the Foundation, Zibby Crawford, the Foundation’s Marketing and Communications Coordinator is this individual. Zibby covers many areas of responsibility, from planning and coordinating the RLS Foundation's presence at meetings and conferences to compiling our eFriends mailing and managing our technological upgrades … It’s a good thing she is the ultimate multi-tasker! Her thirty years of marketing experience has enhanced our outreach.

Before the Foundation, Zibby worked in the high tech industry but fell in love with the nonprofit sector when she served as Board President for the National Charity League, Capital of Texas Chapter. Zibby's warm, bubbly and outgoing personality make her a joy to work with. She is always ready to teach a new skill or lend a hand. She has raised four kids, is waiting patiently on grandkids, but until then has a chihuahua rescue dog, Daisy.

Zibby’s motto is “Spread joy!” and she carries that spirit with her each and every day.

Meet Faith

When calls come in to the Foundation with questions, concerns or requests, they are answered with a positive, friendly voice ready to help. Faith Duncan is usually the first to greet callers, ready to help with any and all issues. Many times it's as simple as helping members log on to the Members Only section of our website. But, Faith has fielded any number of calls ranging from despair about this often debilitating disease, to requests from volunteers wanting to share knowledge with others in their community.

Faith put aside a career as an engineer to be a stay at home mom for many years. She became an active member of a non-profit where she served on the Board of Directors at the National Charity League, Inc., Capital of Texas Chapter, a mother-daughter service organization. Now, with her youngest in college, Faith has taken on her position as Member Services Coordinator and tackled some difficult software and processes with her very analytical, engineering approach and problem-solving abilities!

We are very fortunate to have her very sharp mind as well as her compassionate spirit - Faith has made such a difference here at the Foundation. We wish her a Happy Birthday this month, and hope you have the opportunity to experience her uplifting, positive attitude in the future ... you are not alone!