Monday, September 15, 2014

FOR IMMEDIATE RELEASE: SHARE THE NEWS OF WILLIS-EKBOM DISEASE AWARENESS DAY 2014

FOR IMMEDIATE RELEASE:
SHARE THE NEWS OF WILLIS-EKBOM DISEASE AWARENESS DAY 2014

ROCHESTER, MINNESOTA - SEPTEMBER 15, 2014 - Willis-Ekbom Disease (WED) Awareness Day will be on Tuesday, September 23, 2014 to educate the public about Willis-Ekbom disease (also known as restless legs syndrome-RLS) – a common neurological disorder that affects the lives of millions. This day is an encouragement to continue to educate ourselves and work together as we take steps towards developing better treatments and a cure for WED/RLS.

“WED Awareness Day 2014 is an annual public awareness campaign to recognize the many accomplishments that have been made to increase awareness and education of the condition.  But, our work is not yet done.  The identification of new and better treatments is key to improving the quality of life for individuals living with WED/RLS.  In addition, new research leading to better treatment options will help people to lead full and productive lives,” noted Karla Dzienkowski, Executive Director of the Willis-Ekbom Disease Foundation.

Willis-Ekbom disease is a disruptive neurological disease characterized by an irresistible urge to move and by uncomfortable sensations in the legs or other limbs. The symptoms typically occur in the evening and worsen with rest. Thus, for many, WED/RLS severely disrupts sleep. Lack of awareness of this common disorder has caused many to suffer for years from misdiagnosis or a lack of diagnosis.

During WED Awareness Day and throughout the year, the nonprofit WED Foundation educates patients and healthcare providers and works to improve the future by funding research to find a cure. We have sought to improve the standard of care by developing a Quality Care Certification program that has recognized four centers in the United States and one in Europe.  Locally, support groups across the nation help increase awareness, hold educational meetings, and provide support to many people and families living with WED/RLS.  To learn more, visit the WED Foundation's website at www.willis-ekbom.org.