Restless Legs Syndrome Foundation Blog

Living with a chronic illness can sometimes feel overwhelming and burdensome. RLS is more than just physical discomfort. The debilitating symptoms associated with RLS, such as sleep disturbances, chronic fatigue, and heightened stress levels due to the constant urge to move their legs – especially during periods of rest or inactivity – can take a toll on one's mental health and wellbeing.

In fact, data shows that adults with RLS have a two- to four-fold risk of significant depression compared to those who do not have RLS.² The chronic nature of RLS symptoms, coupled with the disruption it causes to daily life and sleep patterns, can exacerbate feelings of frustration, hopelessness, and lowered mood, contributing to the development or worsening of mental health issues.

Addressing mental health concerns alongside RLS treatment is crucial for comprehensive care and quality of life. Talking openly about the mental health impact of RLS and seeking care is a vital step in breaking the stigma surrounding both conditions. Therapy, counseling, and support groups can provide individuals with coping strategies, emotional support, and a sense of community, empowering them to manage both their physical and mental health challenges more effectively. To find a support group near you, reach out to info@rls.org.

While depression can occur in anyone and at any age, acknowledging the impact of RLS on mental health and advocating for comprehensive care can aid in supporting those affected, promoting a culture of empathy, raising awareness, and encouraging understanding and acceptance. If you or someone you know is struggling with RLS or mental health concerns, remember that help is available, and reaching out is the first step towards healing and recovery.

Mental Health Resources:

If you are having any depressive symptoms, make an appointment to see your healthcare provider. The combination of depression, sleep deprivation and RLS requires a comprehensive medical exam and treatment plan to manage symptoms. 

Explore these free resources to lean on if you or someone you know is experiencing a mental health crisis:

• 988 Suicide & Crisis Lifeline offers 24/7, confidential support for people in distress. 
• SAMHSA’s National Helpline is a 24/7 treatment referral and information service. 
• FindTreatment.gov helps people seek treatment for mental and substance use disorders. 
• National Institute of Mental Health outlines additional mental health services. 

For more information on RLS and mental health, download the Depression and RLS handout or reach out to info@rls.org.

1. Substance Abuse and Mental Health Services Administration. (2022). Key substance use and mental health indicators in the United States: Results from the 2021 National Survey on Drug Use and Health (HHS Publication No. PEP22-07-01-005, NSDUH Series H-57). Center for Behavioral Health Statistics and Quality, Substance Abuse and Mental Health Services Administration. https://www.samhsa.gov/data/report/2021-nsduh-annual-national-report 
   
   
2. Hornyak, Magdolna. “Depressive disorders in restless legs syndrome: epidemiology, pathophysiology and management.” CNS Drugs vol. 24,2 (2010): 89-98. doi:10.2165/11317500-000000000-00000

Top 5 Things School Nurses Need to Know About RLS

By Anjana Ganesh, RLS Foundation Intern and Kaleigh Maxwell, RLS Foundation Program Coordinator

Research suggests that RLS affects an estimated 1.5 million children and adolescents in the US, confirming that RLS and PLMD are not unique to adulthood. In addition to healthcare providers, friends, and family members, school nurses are often active supporters of children affected by RLS and play a significant part in ensuring the child receives comprehensive care and accommodations within the school setting.

In honor of National School Nurses Day, celebrated May 8th, 2024, the RLS Foundation wants to recognize the valuable role that school nurses play for those affected by Restless Legs Syndrome and share five important facts for school nurses to understand about RLS that can in turn help them more effectively support young students with RLS:

1. Be Knowledgeable about RLS Symptoms and Diagnosis

It is important for all healthcare providers to be properly educated on the typical symptoms of RLS, including an irresistible urge to move the leg, an onset or worsening of symptoms with rest, relief with movement, following a circadian pattern, and the exclusion of mimics. Understanding the different diagnostic criteria and recognizing symptoms in children can help identify potential cases and reduce delays in diagnosis.

2. Recognize the Impact on Sleep and Functioning

RLS can significantly affect a student’s sleep quality leading to daytime fatigue, irritability and difficulty concentrating in class. Recognizing chronic exhaustion can prompt discussions for appropriate interventions and support strategies.

3. Familiarize Yourself with Common RLS Triggers

Be familiar with common triggers for RLS like stress, caffeine, and medications. Encourage students with RLS to adopt healthy lifestyle habits like regular exercise, stress management and a balanced diet.

4. Educate Other School Staff

Ensure that teachers and other staff members are aware of RLS and how it can impact a student’s well-being and academic performance. Work with staff members to create accommodations to help manage RLS during school (like seating in back of the room to permit standing or stretching during classes, priority scheduling of courses and 504 designation, if indicated).

5. Collaborate with Healthcare Providers and Families

Establish open communication channels with both the healthcare providers and families of students diagnosed with RLS or actively seeking a proper diagnosis. By contributing to student care plans, it helps ensure consistent support both at school and home.

By understanding the complexities of Restless Legs Syndrome (RLS) and implementing appropriate support strategies, school nurses can make a meaningful difference in the lives of affected students. Through collaboration with healthcare professionals, families, and educators, we can ensure that students with RLS receive the necessary care and accommodations to thrive within the school setting. Together, let us work towards creating an inclusive and supportive environment where every student affected by Restless Legs Syndrome can reach their full potential!

For additional resources and educational material, visit the RLS Foundation website.