Restless Legs Syndrome Foundation Blog

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Friday, September 27, 2013

Dear Friend, You have an opportunity to help us make even more of a difference for our Foundation. Have you ever written an online revie...

Friday, September 27, 2013

Dear Friend,

You have an opportunity to help us make even more of a difference for our Foundation. Have you ever written an online review of a product or restaurant? GreatNonprofits.org – a review site like Zagats or TripAdvisor – is honoring highly-reviewed nonprofits with the 2013 Top-Rated List. Won’t you help us raise visibility for our work by posting a review of your experience with us? You could be the first one to review us! All reviews will be visible to potential donors and volunteers. It’s easy, only takes a minute and your review could help us win a spot on the 2013 Top-Rated List.

Learn about GreatNonprofits Top-Rated Program:

http://greatnonprofits.org/nonprofitnews/nominate-2013-top-rated-awards/

Write a review:

http://greatnonprofits.org/reviews/write/restless-legs-syndrome-foundation-inc

FOR IMMEDIATE RELEASE: AWARENESS DAY 2013

Thursday, September 19, 2013

FOR IMMEDIATE RELEASE: SHARE THE NEWS OF WILLIS-EKBOM DISEASE AWARENESS DAY 2013 ROCHESTER, MINNESOTA - SEPTEMBER 19, 2013 - Wil...

Thursday, September 19, 2013

FOR IMMEDIATE RELEASE:

SHARE THE NEWS OF WILLIS-EKBOM DISEASE AWARENESS DAY 2013

ROCHESTER, MINNESOTA - SEPTEMBER 19, 2013 - Willis-Ekbom Disease (WED) Awareness Day will be celebrated on Monday, September 23, 2013 to educate the public about Willis-Ekbom disease (also known as restless legs syndrome-RLS) – a common neurological disorder that affects the lives of millions. This week is an encouragement to continue to educate ourselves and work together as we take steps towards developing better treatments and a cure for WED/RLS.

“WED Awareness Week 2013 was designed not only to honor the many accomplishments we have made so far but also to recognize that we still have a long way to go. There are still so many people with WED/RLS who don’t have access to the resources or information they need to be educated about their disease. In addition, we need for research and treatment options to help people lead healthy and productive lives,” explained Georgianna Bell, Executive Director of the Willis-Ekbom Disease Foundation.

Willis-Ekbom disease is a disruptive neurological disease characterized by an irresistible urge to move and by uncomfortable sensations in the legs or other limbs. The symptoms typically occur in the evening and worsen with rest. Thus for many, WED/RLS severely disrupts sleep. Lack of awareness of this common disorder has caused many to suffer for years from misdiagnosis or a lack of diagnosis.

On WED Awareness Day and throughout the year, the nonprofit WED Foundation educates patients and healthcare providers and works to improve the future by funding research to find a cure. Locally, the support groups across the nation help increase awareness, hold educational meetings, and provide support to many people and families living with WED/RLS. To learn more, visit the WED Foundation's website at www.willis-ekbom.org.

Awareness Day is September 23rd: Create Awareness for WED/RLS

Monday, August 26, 2013

We’re trying to put together some ideas to help raise awareness of WED/RLS. Here are a few: Manicure or Pedicure for a Cure Get a man...

Monday, August 26, 2013

We’re trying to put together some ideas to help raise awareness of WED/RLS. Here are a few:

Manicure or Pedicure for a Cure

Get a manicure or pedicure that uses the colors of our logo: blue and yellow. You may want to incorporate the swirls or some lettering to your nails. CURE WED! or CURE RLS!

Wear Slippers Work to Raise Awareness for WED/RLS!

Wear night slippers to work on a designated work day. Ask your company to collect donations for the WED Foundation when employees can wear bedroom slippers to work. Companies can charge a small fee or ask for donations. The collect donations can be sent to the Foundation to help support vital programs.

Garage or Bake Sale for a Cure!

Get family, friends and co-workers to donate items to a local garage sale. All proceeds from your sale would be donated to the WED Foundation. It is a great way to clean out your closets and create awareness for WED/RLS.

Awareness Day Activity: Shop to raise funds for the WED Foundation

Thursday, August 22, 2013

I'm Jessica Roehm. I'm a 29 year old woman from the San Francisco Bay Area, plagued with WED/RLS. In the past year, my symptoms ...

Thursday, August 22, 2013

I'm Jessica Roehm. I'm a 29 year old woman from the San Francisco Bay Area, plagued with WED/RLS. In the past year, my symptoms have gotten worse and it's lead me to reach out for help.

After my general practitioner told me she had never referred patients with this disease to neurology, I realized there is not enough known about WED/RLS. I did research on my own and discovered Willis-Ekbom Disease Foundation, which has validated those nights my legs want to keep moving and keep me awake.It also made me discover that I am actually not alone!

I became a stylist for Stella & Dot so that I can work from home, set my hours, learn about myself and help women find what they may not even know they want or need in their lives. I do this for my dachshund, Shelby, who survived a horrific cliff accident in 2012.

Stella & Dot allows women of all shapes and sizes to embrace their beauty so that they can start feeling better about themselves. Through my Stella & Dot business, I'm running a fundraiser to promote Willis-Ekbom disease, also known as restless legs syndrome or WED/RLS, awareness and to support the Willis-Ekbom Disease Foundation. WED/RLS affects me, my mother and grandmother had this condition.

Let's bring awareness together and you may enjoy all some really great jewelry and accessories from this link ==> www.stelladot.com/ts/qulr5.

I pledge to donate 20% of my commissions from all sales to Wilis-Ekbom Disease Foundation. If you have any questions, please contact me as your stylist, 650-455-6149 or jnroehm@me.com.

WED/RLS Awareness Day is September 23, 2013. Please share your awareness and fundraising efforts with the Foundation.

Guest Blogger: Annmarie Lindon

Monday, August 12, 2013

RLS NEVER SLEEPS I sit awake late at night Thoughts are flying around my head My body and mind are so exhausted I only want to sl...

Monday, August 12, 2013

RLS NEVER SLEEPS

I sit awake late at night

Thoughts are flying around my head

My body and mind are so exhausted

I only want to sleep in my bed

My legs have their own agenda

All different times, day and night

But you can bet your precious farm

My legs and I meet daily and fight

I always seem to lose the battle

My legs, the pain is too much for me

I try to bang, slap, and walk it off

But relief for me was not meant to be

Sometimes I think I’ve beaten it

The time is way past eight

But then the devil sneaks up on me

And shows me it’s never too late

I dream of the day I don’t have this

The fact that I can’t sleep at night

The pain that controls my arms and legs

The dream that a cure soon be in site

3-2000Annmarie Lindon

About the blogger: I'm 46 and have been suffering with WED/RLS since I was 12 years old. Back then it was growing pains but I knew it was much more. It wasn't until I got married in 93 when a name was put to it for me. My world changed. I'm NOT CRAZY!!! Unfortunately it started with both legs and then moved to both arms. It is not just the "drive me crazy" feeling but the pain that goes along with it. I'm on numerous Rx for WED/RLS and insomnia. I pray one day soon there will be a cure or at least 1 pill that will work for me. Until then I stay up every night and write.

Second Quality Care Center Announced!

Saturday, August 03, 2013

To better serve its members, the Foundation will maintain a directory of healthcare providers who have expressed interest and/or knowledge ...

Saturday, August 03, 2013

To better serve its members, the Foundation will maintain a directory of healthcare providers who have expressed interest and/or knowledge in the treatment of WED/RLS by being certified as WED/RLS Quality Care Center provider.

We are proud to announce our second certified WED/RLS Quality Care Center!

Appointment Scheduling Information:

Mayo Clinic Central Appointment Office
200 1st Street SW
Rochester, MN 55905
Phone number: (507) 538-3270
Website

Certified Healthcare Providers for Mayo Clinic include:

Bradley F. Boeve, M.D.
Suresh Kotagal, M.D.
Mithri Junna, M.D.
Melissa C. Lipford, M.D.
Michael H. Silber, M.B.Ch.B.
Erik K. St. Louis, M.D.
Maja Tippmann-Peikert, M.D.

You can search for other Quality Care Centers on the Foundation's website.

Youth Initiative Volunteers Needed

Friday, August 02, 2013

The Foundation is putting together a Parent Advisory Board to develop and implement a new program (Hearing Children's Voices) to addres...

Friday, August 02, 2013

The Foundation is putting together a Parent Advisory Board to develop and implement a new program (Hearing Children's Voices) to address the needs of children and youth living with WED/RLS, their families and their community schools and healthcare providers. Interested in joining? Please email crowson@willis-ekbom.org for more information. Thank you in advance for your time.

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Restless Legs Syndrome Foundation Blog

We need your help! Write a review for our Foundation at GreatNonprofits.org

FOR IMMEDIATE RELEASE: AWARENESS DAY 2013

Awareness Day is September 23rd: Create Awareness for WED/RLS

Awareness Day Activity: Shop to raise funds for the WED Foundation

Guest Blogger: Annmarie Lindon

Second Quality Care Center Announced!

Youth Initiative Volunteers Needed

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