Meetings
The WED Foundation's posters at the 2014 SLEEP meeting in Minneapolis, MN
Friday, May 30, 2014
Last fall more than 1,600 WED Foundation members participated
in the Patient Odyssey Survey which took an in depth look at the effects that
WED/RLS has on lifestyle and emotional health of patients and their
partners. At the annual SLEEP meeting in
Minneapolis in June 2014, Dr. Becker and Dr. Ondo, WED/RLS experts who are on
the Foundation's Medical Advisory Board, will present the
survey results. SLEEP meeting participants will have the opportunity to review
and discuss the survey results with the WED Foundation leading experts.
The data from the
survey confirmed that the quality of life for both the individual with WED/RLS
and their spouse/partner is seriously impacted.
Individuals with WED/RLS and their partners experienced disturbances in
their sleep, mood, productivity, and the ability to participate in
social/leisure activities. Though it
will not be a surprise for individuals who suffer from WED/RLS, the survey
presents a comprehensive picture that goes beyond anecdotal reports.
The WED Foundation
survey respondents confirmed the need for greater awareness and understanding
of the disease condition among physicians, the public and in the media. According to the survey, for people suffering
from WED/RLS, educating physicians about the available treatment options and
creating long term disease management plans were a priority. These are the very
priorities that the WED Foundation embraces and supports.
The Foundation thanks
our members for participating in the survey and providing valuable information
for the SLEEP meeting poster presentations.
The active involvement of our members will continue to ensure that
important data is collected and analyzed by experts and shared with people
affected by WED/RLS. Education and
increased awareness among sleep physicians and researchers will positively
impact the lives of men, women, and children living with WED/RLS.
SLEEP meeting info can be found at: http://www.sleepmeeting.org
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