Guest Blog
Guest Blogger: Kathy Page ~ What Have You Done for Me Lately?
Thursday, July 10, 2014
I have to be honest; the current “cartoon” about renewing a
WED Foundation membership is not exactly how I originally envisioned it. My original title was “What Have You Done for
Me Lately?” and showed a person with arms crossed, saying “You want me to donate
to the WED Foundation? What have they
done for me?” (see image below)
The reason I wanted to present the cartoon this way is
because that question has been asked of me several times and in just that tone
of voice. I talk to a lot of people
about WED/RLS; I am a support group leader in Missouri and am on the board of
directors for the Foundation. I also
help moderate the Facebook page and am in contact with a lot of people. I have made some wonderful friends because of
this horrible disease but I have also come in contact with people who just have
a different view of things.
I am incredibly amazed and thankful for the many people who
make donations to the Foundation because they see the reason for it. Those donations may be for a specific area,
such as research or education, or they may just be sent to be used where needed
most. These people realize that
donations and memberships have to come in order for the Foundation to continue
to do the work it does.
Many years ago, we received money from pharma companies for
various activities. But the Foundation
received a lot of criticism from the media and yes, from WED/RLS sufferers for
this so that practice was stopped. Now
we depend on donations and memberships to provide the services we offer. Without these, the Foundation would have to
close its doors. As it is, we have had
to make a lot of cut-backs and stop doing some of the truly beneficial things
we used to. For example, yearly patient
meetings were held for a long time with various doctors attending as well as
great speakers. These were extremely
popular but when funding went away, so did the meetings.
Again, I want to thank the many people who consistently make
donations and for the people who decide to become members. I can’t stress this enough. Without them, the Foundation would no longer
exist. What is tragic are the people who
cannot seem to see the many benefits they gain from the Foundation. These people never seem to be satisfied. A free on-line diagnostic tool, free
educational materials, free patient webinars, research grants in the amount of
$1.4 million, free discussion board for support and help, free Facebook
site…..so what? Why should I make a
donation? What have you done for me
lately? I don’t understand them. These “free” things take money to continue
for everyone’s benefit.
There are also people who would gladly make a donation or
become a member but just cannot afford to.
This cartoon is NOT aimed at them.
Times can be tough, other things take precedence; completely
understandable by anyone. There may come
a time when they can make a contribution and in the meantime, the Foundation
will continue its work for everyone. And
yes, I do mean EVERYONE!
I have been on both sides of WED/RLS; as a sufferer who is
looking for support and information and as a board member who is trying to do
the best possible with the funds available.
I make a monthly donation—because I AM on both sides and know the
need. If you can find your way to make a
donation or become a member, then I say “Thank You!” You can even send extra to cover someone
else’s membership that can’t afford it.
But even a $5 donation is $5 more than we had. If you can’t, then it is okay; maybe someday
you will be able to.
So the “cartoon” was redone to give good information about
what your donation helps pay for and also to be more positive. Much more productive than my original
idea! However, I do realize that one
thing is missing from this “cartoon”—a huge thank you to everyone who supports
the Foundation in any way. So here it
is, the final panel for this cartoon:
THANK
YOU FOR MONETARY DONATIONS
THANK YOU FOR SUPPORTING OTHERS
THANK YOU FOR VOLUNTEERING TO
HELP
THANK
YOU!
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